Hi all!
Introduction/background:
I was diagnosed with Crohn's disease, one of the two major forms of internal bowel disease (IBD) in late 2014 when I was 21 yrs old. I excreted blood, we went to the hospital, got diagnosed with Ulcerative Colitis. Mid 2018 the diagnosis changed to Crohn's disease, which basically means inflammation can appear anywhere in the GI tract instead of the large intestine - but for now luckily only the large intestine is involved.
2014-2018 was pretty much OK, but for the past half year I've been in this vicious cycle: get prednison to suppress the immune system, which makes me 'get better', then I taper off the prednisone and when I'm at like half the starting dosage it gets bad again, and very quickly then I'm again into this big flare-up which makes me get fever and I have to run to the toilet 8 times a day and excrete blood quite a lot -> then my GI doc puts me on a higher dosage of prednisone again.
Obviously I don't want to be cycling pred, which I have been doing for 6 months now. Meanwhile we're trying out long-term medications which are safe long-term (unlike prednisone), but what we tried does not have (enough) effect so far. And every long-term medication is trial and error, and with every new trialed medication you have to wait some weeks-months before you can assess if it's working or not.
Nutrition:
Now I haven't done a study in the field of medicine or nutrition, but I try to keep up a bit with the publications that relate nutrition to IBD. An idea that is supported for a long time now is that the development and growth of IBD is related to the Western Diet high in refined sugar and saturated fat (and low in probiotics, while formerly, before we had fridges, we used probiotics to preserve food). Next, the idea that a) nutrition influences and shapes the gut microbiome, and b) that an out-of-balance-microbiome (dysbiosis) causes the human immune system to develop IBD in genetic susceptible persons, is gaining tract the last years. Recommendations on how to eat however to positively influence the microbiome, are harder to find. Most conclusions for now still are: we now know that diet influences the microbiome and the state of the microbiome influences IBD, but there needs to be done more research before we can make nutritional recommendations.
Prebiotics and probiotics, and fecal microbiota transplants (FMT)
What some people on the internet and youtube suggest to do, and what several studies tried, is increasing the intake of the 'good' strains of bacteria - consuming probiotics as a means to hopefully get the microbiome to become healthy or balanced again, with the end-goal that the immune-system then would stop creating inflammation in the colon. Then, they add prebiotics as well as 'food' for the probiotics (food particles that do not get digested by the human, and survive all the way to the colon, and get fermented by the probiotics in the gut). This sounds really great to me because it's an easy diet alteration, but there have been a lot of studies looking at probiotics that do not really support this idea: they divide people in two groups, group A gets the probiotic, group B doesn't, and they measure if there is a difference in how long it takes before the persons get a bad flare of inflammation again. The studies generally do not see differences between the groups.. The studies conclude that probiotics can't be recommended as treatment or addition to treatment.
Fecal microbiota transplants: the idea goes back to traditional Chinese medicine. When your gut is wrecked, import the content of a health person, and what they saw was well hey, some guys get better. It's basically the same proposition as the prebiotics+probiotics idea: insert good gut bacteria (but now via a different route obviously), to get the target gut in a healthy/balanced state again, to stop the human immune system from creating inflammation (which is likely a reaction to the disbalanced microbiome). This works for some people, but results are mixed.
M. Chiba and the Plant-Based Diet
Now there's this guy treating IBD-guys in Japan, and he and his team are feeding the patients a traditional Japanese diet since like 2000 which they now since 2019 call the Plant-Based Diet since that's a more common term on the internet. The patients get to eat higher-fiber, plant-based foods (also when they are flaring), a pretty good amount of probiotic food sources (the traditional Japanese diet is full of them), and only very minimal portions of eggs and fish (every so often in a week). This recommendation is controversial because in the West they say: when you're flaring you've got to eat bland, low-fiber goods that are easily digestible. He's publicized a study where like 94% percent of the IBD-guys that get admitted to the hospital, are still in remission after two years. That's an insane rate compared to even medical trials with state of the art medications that only have remission rates of like 65% max for this timespan.
Me and the Plant-Based Diet
I really want to give this plant-based diet a proper shot since the result is this good. I also started supplementing with some high-dosed probiotics a few days ago. First time I looked at this study from M Chiba however, I got really disappointed by the lack of information on like what meals they ate. My second issue is that if you scrap the fat and sugar from the diet, and get everything unprocessed, and you further limit yourself to eating no animals, to me it seems like you've got to eat like an animal to even reach 2k kcal/day. When you eat 50g oats, 3x 100g brown rice with some veggies, another 50g oats, that's like 4 x 350kcal = 1.400 kcal. You can add beans but they are also only like 100kcal / 100g. I might just go mad on a huge banana smoothie every morning with like 8 banana's and 80g oats, to start with 8x90 + 0.8x350 ~ 1.000kcal.
Any ideas on how to reach 2.5kcal a day for starters, plant-based, are very welcome..!
Also if you've got UC or CD, or know someone who has it and is doing really well after implementing some sort of method, please share it and I will give it a shot.
Introduction/background:
I was diagnosed with Crohn's disease, one of the two major forms of internal bowel disease (IBD) in late 2014 when I was 21 yrs old. I excreted blood, we went to the hospital, got diagnosed with Ulcerative Colitis. Mid 2018 the diagnosis changed to Crohn's disease, which basically means inflammation can appear anywhere in the GI tract instead of the large intestine - but for now luckily only the large intestine is involved.
2014-2018 was pretty much OK, but for the past half year I've been in this vicious cycle: get prednison to suppress the immune system, which makes me 'get better', then I taper off the prednisone and when I'm at like half the starting dosage it gets bad again, and very quickly then I'm again into this big flare-up which makes me get fever and I have to run to the toilet 8 times a day and excrete blood quite a lot -> then my GI doc puts me on a higher dosage of prednisone again.
Obviously I don't want to be cycling pred, which I have been doing for 6 months now. Meanwhile we're trying out long-term medications which are safe long-term (unlike prednisone), but what we tried does not have (enough) effect so far. And every long-term medication is trial and error, and with every new trialed medication you have to wait some weeks-months before you can assess if it's working or not.
Nutrition:
Now I haven't done a study in the field of medicine or nutrition, but I try to keep up a bit with the publications that relate nutrition to IBD. An idea that is supported for a long time now is that the development and growth of IBD is related to the Western Diet high in refined sugar and saturated fat (and low in probiotics, while formerly, before we had fridges, we used probiotics to preserve food). Next, the idea that a) nutrition influences and shapes the gut microbiome, and b) that an out-of-balance-microbiome (dysbiosis) causes the human immune system to develop IBD in genetic susceptible persons, is gaining tract the last years. Recommendations on how to eat however to positively influence the microbiome, are harder to find. Most conclusions for now still are: we now know that diet influences the microbiome and the state of the microbiome influences IBD, but there needs to be done more research before we can make nutritional recommendations.
Prebiotics and probiotics, and fecal microbiota transplants (FMT)
What some people on the internet and youtube suggest to do, and what several studies tried, is increasing the intake of the 'good' strains of bacteria - consuming probiotics as a means to hopefully get the microbiome to become healthy or balanced again, with the end-goal that the immune-system then would stop creating inflammation in the colon. Then, they add prebiotics as well as 'food' for the probiotics (food particles that do not get digested by the human, and survive all the way to the colon, and get fermented by the probiotics in the gut). This sounds really great to me because it's an easy diet alteration, but there have been a lot of studies looking at probiotics that do not really support this idea: they divide people in two groups, group A gets the probiotic, group B doesn't, and they measure if there is a difference in how long it takes before the persons get a bad flare of inflammation again. The studies generally do not see differences between the groups.. The studies conclude that probiotics can't be recommended as treatment or addition to treatment.
Fecal microbiota transplants: the idea goes back to traditional Chinese medicine. When your gut is wrecked, import the content of a health person, and what they saw was well hey, some guys get better. It's basically the same proposition as the prebiotics+probiotics idea: insert good gut bacteria (but now via a different route obviously), to get the target gut in a healthy/balanced state again, to stop the human immune system from creating inflammation (which is likely a reaction to the disbalanced microbiome). This works for some people, but results are mixed.
M. Chiba and the Plant-Based Diet
Now there's this guy treating IBD-guys in Japan, and he and his team are feeding the patients a traditional Japanese diet since like 2000 which they now since 2019 call the Plant-Based Diet since that's a more common term on the internet. The patients get to eat higher-fiber, plant-based foods (also when they are flaring), a pretty good amount of probiotic food sources (the traditional Japanese diet is full of them), and only very minimal portions of eggs and fish (every so often in a week). This recommendation is controversial because in the West they say: when you're flaring you've got to eat bland, low-fiber goods that are easily digestible. He's publicized a study where like 94% percent of the IBD-guys that get admitted to the hospital, are still in remission after two years. That's an insane rate compared to even medical trials with state of the art medications that only have remission rates of like 65% max for this timespan.
Me and the Plant-Based Diet
I really want to give this plant-based diet a proper shot since the result is this good. I also started supplementing with some high-dosed probiotics a few days ago. First time I looked at this study from M Chiba however, I got really disappointed by the lack of information on like what meals they ate. My second issue is that if you scrap the fat and sugar from the diet, and get everything unprocessed, and you further limit yourself to eating no animals, to me it seems like you've got to eat like an animal to even reach 2k kcal/day. When you eat 50g oats, 3x 100g brown rice with some veggies, another 50g oats, that's like 4 x 350kcal = 1.400 kcal. You can add beans but they are also only like 100kcal / 100g. I might just go mad on a huge banana smoothie every morning with like 8 banana's and 80g oats, to start with 8x90 + 0.8x350 ~ 1.000kcal.
Any ideas on how to reach 2.5kcal a day for starters, plant-based, are very welcome..!
Also if you've got UC or CD, or know someone who has it and is doing really well after implementing some sort of method, please share it and I will give it a shot.
from Bodybuilding.com Forums - Nutrition https://ift.tt/2JVZcMN
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